By Mia Archuleta, Granbury, Texas I have been thinking about people wondering exactly how the FSHDselfies have brought awareness to FSH dystrophy. Here are just a few examples of my… Read More »
Reflecting on FSHDselfies
Meet Kyle Bennett, snowboarder
Kyle Bennett is a 23 year old college student in Sacramento, California, who has FSH muscular dystrophy. An outstanding baseball player when he was younger, he had to give that up. And… Read More »
The Truth Hurts, but I Can Bear It
The following essay was written by Zabrisa, a 16 year old with FSHD who lives in Arizona. “Are you strong enough? Are you really sure you can do this, you’re… Read More »
Good Morning America spotlights FSHD
Carlos Romero, an FSH Society member, was featured today on Good Morning America in connection with People magazine’s annual “Half their Size” issue, which is out on news stands today. While… Read More »
Rocking the boat with FSHD – The Ryan Levinson Story
“Muscular dystrophy is something I might have,” Levinson said. “But it doesn’t define who I am.” Ryan Levinson, of San Diego California, was diagnosed with Fascioscapulohumeral muscular dystrophy (FSHD) in… Read More »