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Media & PR

Home / Media & PR

FSH Society Radio on Living, Loving, Caring, Sharing

July 15, 2020 Pinned Post 1 Comment

Join us via Facebook Live on Wednesday, April 24, at 9:00 pm Central / 10:00 pm Eastern time (note change of time) for our conversation with Drs. Ora and Isaac Prilleltensky… Read More »

Filed Under: Living with FSHD, Media & PR, Mental Health

FSH Society Radio with Ben Livingston

FSHD Society Radio with Ben Livingston, neon artist

October 12, 2020 Pinned Post 4 Comments

Join FSHD Radio via Facebook Live on Wednesday, March 27th, at 8:00 pm Central / 9:00 pm Eastern time for our live interview with Austin-based artist Ben Livingston. Ben drew… Read More »

Filed Under: Media & PR

Workshop

Industry collaborative workshop on FSHD clinical trial readiness

February 1, 2021 Pinned Post 4 Comments

Yesterday, the FSH Society convened a landmark meeting at the Tommy Douglas Conference Center, a stone’s throw from the headquarters of the Food and Drug Administration (FDA). Several FDA regulators… Read More »

Filed Under: FSHD Research, FSHD Society News, Media & PR

RAAM

Team FSHD Skyland Trail will compete in the 2019 Race Across America

October 28, 2020 Pinned Post 2 Comments

From PRWeb The FSHD Society and Skyland Trail today announce that they are jointly entering an eight-person team in the 2019 Race Across America (RAAM) to raise funds for their respective causes. The two… Read More »

Filed Under: FSHD Society News, Fundraising & Events, Media & PR

FSH Society Radio – Acupuncture for FSH muscular dystrophy

July 15, 2020 Pinned Post 2 Comments

Join us via Facebook Live on Wednesday, February 27th, at 8:00 pm Central / 9:00 pm Eastern time for our live interview with Katelyn Michals, a national board-certified licensed acupuncturist… Read More »

Filed Under: Health and Medicine, Media & PR

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