Welcome to the Bay Area Chapter!
Thank you for visiting the Bay Area Chapter of the FSHD Society! We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
Join us for the 2023 Walk & Roll to Cure FSHD
Our 2023 annual Bay Area Walk & Roll to Cure FSHD was an amazing success this year! Thank you to everyone who participated and helped raise awareness and funds towards reaching our goal of a cure by 2025. Fundraising will continue through the end of the year.
Learn more about the 2023 Walk & Roll to Cure FSHD HERE!
Stay tuned as we begin planning for our 2024 Walk & Roll to Cure FSHD. If you would like to volunteer to support the 2024 Walk & Roll, please contact your local chapter director or walk leader.
Sharegiver Hour
To all who are caregivers to FSHD loved ones! Mark your calendars, our Sharegivers Hour is held on the 4th Tuesday of every month from 8-9pm EST. You will find this to be a safe place to share and listen to each other about our day to day situations. We invite you to join us!
Go to the Event Calendar to sign up.
Volunteer Spotlight: Sue & Kent Drescher
Meet your local Chapter Directors, Sue & Kent Drescher! Hear them talk about their journey with FSHD, their advice to others, and their hopes for the future.
To contact us directly, please email: BayAreaChapter@fshdsociety.org
Don’t forget to follow us on FACEBOOK
Please join us! Become a member of our Chapter in the sidebar.
Upcoming Events
CANCELED April 21, 2024 – Alberta Chapter – Edmonton Brunch Meeting
4810 Calgary Trail NW, Edmonton, AB T6H 5H5 4810 Calgary Trail NW, Edmonton, AB, CanadaCANCELEED Due to the lack of RSVPs, we have sadly decided to cancel this event. One of the goals of our Alberta Chapter is to grow our connections and community... Read More »
FSHD Radio: Straight Talk with Tim Hollenback
Facebook and YouTubeIn this episode, FSHD Straight Talk host Tim Hollenback speaks with Trish about life during and after diagnosis. In this candid conversation Trish (last name withheld for privacy) and Tim... Read More »
Virginia Chapter, Monthly Virtual Chapter Meeting
Zoom Virtual Meeting , United States6:00pm ET | 5:00pm CT | 4:00pm MT | 3:00pm PT Virginia Chapter Monthly Virtual Meeting (occurs every 4th Tuesday of the month). RSVP via the below button to ensure... Read More »