Welcome to the Bay Area Chapter!
Thank you for visiting the Bay Area Chapter of the FSHD Society which officially launched in September 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
Thank you to everyone who attended and supported the 2019 Bay Area Walk & Roll to Cure FSHD on Sunday, September 15th at the Alameda Running Festival! Please take a moment to see photos from our event!
To contact us directly, please email: BayAreaChapter@fshdsociety.org
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Past Events › Bay Area Chapter Events
Please save the date: the 2019 Bay Area Walk & Roll to Cure FSHD has been scheduled! We hope to see you on Sunday, Sept. 15th, 2019 at the Alameda Running Festival! To learn all about our fantastic event, please Click HERE! To REGISTER to participate, please Click HERE! To make a DONATION in support of this event, please Click HERE! Finally, please reach out to the Chapter Directors, Kent & Sue Drescher, with any questions! They can be found at: BayAreaChapter@fshdsociety.org. We look forward to seeing you on…Find out more »
Join radio host Tim Hollenback via Facebook Live on Wednesday, September 25, at 9:00 PM EST for a conversation with Dr. David Younger, a clinical psychologist based in Austin, Texas. He was diagnosed with FSHD at age four, the same time as his mother and grandmother were also found to have the condition. In a compelling blog post, he shared his personal journey of learning to accept his life with FSHD and moving beyond it to finding well-being and becoming a clinical psychologist.…Find out more »
Join host Tim Hollenback on October 30, 2019 on Facebook Live for a conversation with the fantastic Alan Brown. Originally scheduled for July 31, the show had to be rescheduled due to technical difficulties. Alan, of Holicong, Pennsylvania, is the director of business development at NFL Films, the company that produces commercials, television programs, feature films, and documentaries for and about the National Football League (NFL). Alan Brown of NFL Films. Alan has FSHD in his family. “My great-grandmother, grandmother, mother and…Find out more »