Welcome to the Central Texas Chapter!
Thank you for visiting the Central Texas Chapter of the FSHD Society which officially launched in March 2020. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
The goals of the Chapter Program here in the Central Texas area are to:
- Increase awareness and educate families throughout Central Texas.
- Help build connections among patients, care givers, health care providers and others affected by this disease.
- Harness the power of those shared connections allowing us all to gain strength, support and encouragement as we push forward in finding a cure for FSH.
- Last but not least let’s HAVE SOME FUN while we accomplish these goals!
Special All Texas Chapter Meeting on ADA Accessibility in Public Spaces
7:00pm-8:00pm CT
Please join us on Wednesday, April 24th for a virtual chapter meeting open to all Texas community members. We will be joined by guest speaker, Attorney Brandon A. Rotbart, P.A. who will discuss ADA Compliance in public spaces. Mr. Rotbart is an attorney who represents disabled plaintiffs in the enforcement of Title III of the Americans with Disabilities Act (ADA).
Hope to see you there!
~Glen Denehie, North Texas Chapter Director
Join us for a Virtual Happy Hour on March 17
DATE: Sunday, March 17, 2024
TIME: 6:00 pm - 7:00 pm CT
WHERE: Virtually via Zoom
DETAILS: Pour your favorite beverage and come here the great news - FSHD 360 is coming to Texas! Join us for a virtual happy hour where we'll get a special sneak peak of what's going to be discussed at the FSHD 360 in Round Rock, connect with others across Texas, and get excited for 2024, all while enjoying your favorite drink. This is open to all friends across Texas.
The 2023 Central Texas Walk & Roll to Cure FSHD!!
Our 2023 annual Central Texas Walk & Roll to Cure FSHD was an amazing success this year! Thank you to everyone who participated and helped raise awareness and funds towards reaching our goal of a cure by 2025. Fundraising will continue through the end of the year.
Learn more about the 2023 Walk & Roll to Cure FSHD HERE!
Stay tuned as we begin planning for our 2024 Walk & Roll to Cure FSHD. If you would like to volunteer to support the 2024 Walk & Roll, please contact your local chapter director or walk leader.
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Read our CenTex Summer Hot Sheet with great information about World FSHD Day, the Walk & Roll and more!
Volunteer Spotlight: Ashley Bryan
Meet your local fundraising leader, Ashley Bryan! She shares her journey with FSHD, how her connection to the FSHD Society has helped her, and why she's hopeful for the future.
To contact us directly, please email: CenTexChapter@fshdsociety.org
Don’t forget to follow us on FACEBOOK
Upcoming Events
North Texas Virtual Chapter Meeting
Virtual Denver, United States8:00pm ET | 7:00pm CT | 6:00pm MT | 5:00pm PT North Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on Wednesday, April 24th for a virtual chapter meeting North Texas... Read More »
Texas FSHD 360
Allen R. Baca Center 301 W. Bagdad Ave. Building 2, Round Rock, TX, United States9:00 a.m. US Central Time doors open | 10:00-3:00 p.m. US CT conference sessions Save the date!! The FSHD Society, in collaboration with the University of San Antonio Health Science... Read More »