Welcome to the Chicagoland Chapter!
Thank you for visiting the Chicagoland Chapter! We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
Volunteer Spotlight: Dave Lukas
Hear from your Chapter Director, Dave Lukas, about his journey with FSHD, how he got involved with the FSHD Society, and why he's hopeful for the future.
The Chicagoland Walk & Roll to Cure FSHD - Fall 2021!
To reach us, please email: ChicagoChapter@fshdsociety.org
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Would you like to get involved? Simply fill out the form in the sidebar.
Past Events › All Chapters
8:00 - 9:00 PM ET This monthly meeting is for those of you who are providing care to loved ones with FSHD. To spark discussion, we're recommending this short article in Time magazine: How to Help a Caregiver Without Saying Stay Positive. Don't worry if you don't have time to read it. Join us anyway! For those who are interested, here is the recent book by Kate Washington who wrote the article: Already Toast: Caregiving and Burnout in America. This…Find out more »
This is our monthly Zoom meeting on Wellness, held on the second Monday of each month at 5:00-6:00 pm ET (if Monday is a national holiday, the meeting will be held on Tuesday). It is open to everyone in the FSHD community. This is your time to enjoy the company of fellow FSHers, share challenges, talk about what works for you, and feel validated and supported in whatever you may be going through. This month, we welcome Ray Jordan and…Find out more »
9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT LISTEN HERE Note: our original program featuring the FSHD Society's Jamshid Arjomand, PhD, chief science officer, has been postponed until later this year. Instead, we are delighted to welcome Rabbi Haviva Ner-David, a long-time member of the FSHD Society whose first novel, Hope Valley, is being published this month. Haviva drew on her experience living with FSHD to create two compelling Israeli women, one Jewish…Find out more »