Welcome to the Colorado Chapter!
Thank you for visiting the Colorado Chapter of the FSHD Society!
We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
Colorado Walk & Roll to Cure FSHD - Fall 2021!
To contact us directly, please email: ColoradoChapter@fshsociety.org.
Don’t forget to follow us on FACEBOOK!
Upcoming Events › All Chapters
8:00 - 9:00 PM ET This monthly meeting is for those of you who are providing care to loved ones with FSHD. This virtual meeting is a safe and supportive space to share your experiences, challenges, and helpful tips with other caregivers. Please respect our rules restricting this meeting to caregivers (or "sharegivers," as Isaac Prilleltensky has proposed, because providing care to loved ones is a two-way street). Because we don't want to publicly post the Zoom meeting link (to…Find out more »
This is our monthly Zoom meeting on Wellness, held on the second Monday of each month at 5:00-6:00 pm ET (if Monday is a national holiday, the meeting will be held on Tuesday). It is open to everyone in the FSHD community. This is your time to enjoy the company of fellow FSHers, share challenges, talk about what works for you, and feel validated and supported in whatever you may be going through. If you are interested, please register by…Find out more »
Jams' Session with Jamshid Arjomand, PhD, Chief Science Officer, FSHD Society 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Our guest tonight is the FSHD Society's Jamshid Arjomand, PhD, chief science officer and our go-to source for what's happening in FSHD research. What are the most intriguing recent discoveries? How many companies are now working on treatments, and what are their approaches? How soon might we see new clinical trials? Ask Jamshid! Join…Find out more »