Welcome to the Columbus Chapter!
Thank you for visiting the Columbus Chapter of the FSHD Society which officially launched in July 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
You may contact the Columbus Chapter Director, Sue Aumiller: ColumbusChapter@FSHDSociety.org
Check out some great photos from our Chapter meeting on Nov. 11th, 2018:
Past Events › Columbus Chapter Events
Meredith Huml Join radio host Tim Hollenback via Facebook Live on Wednesday, December 18, at 9:00 PM ET | 8:00 PM Central. His guest this month is Meredith Huml, director of the North Carolina chapter. Diagnosed at age 12 with a "disease she had never heard of," Meredith faced the wrenching loss of her beloved dancing. Her younger brother Jonathan as diagnosed with FSHD as well, with symptoms that progressed even faster than hers. After years of struggling, she has not…Find out more »
Scott Harper,PhD Join radio host Tim Hollenback via Facebook Live on Wednesday, January 8, at 9:00 PM ET | 8:00 PM Central. His guest this month is FSHD research rock star Scott Harper, PhD, a leader in the effort to develop gene therapy. Harper is principal investigator at the Center for Gene Therapy at the Research Institute at Nationwide Children's Hospital, and associate professor of pediatrics at the Ohio State University College of Medicine, Columbus, Ohio. He is a molecular biologist…Find out more »
You won’t want to miss our next Chapter meeting as there is so much to share! It’s an exciting time in the world of FSHD. Join us on Sunday, January 12th from 1-3 pm at the Columbus Metropolitan Library-Dublin Branch. Please note: We will be in Meeting Room 2! Our special guest speaker will be Marco Tellez, CRC, CMA, who is the Coordinator for the ReSolve Study at OSU and is excited to discuss it with us! They are currently…Find out more »