Welcome to the Columbus Chapter!
Thank you for visiting the Columbus Chapter of the FSHD Society which officially launched in July 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
You may contact the Columbus Chapter Director, Sue Aumiller: ColumbusChapter@FSHDSociety.org
Check out some great photos from our Chapter meeting on Nov. 11th, 2018:
Past Events › Columbus Chapter Events
Save the date: The 2019 Columbus Walk & Roll to Cure FSHD has been scheduled! We hope to see you on Saturday, Sept. 14th, 2019 at Coffman Park Pavilion! To learn all about our fantastic event, please Click HERE! To REGISTER to participate, please Click HERE! To make a DONATION in support of this event, please Click HERE! To learn more about SPONSORSHIP opportunities, please Click HERE! Finally, please reach out to the Chapter Director, Susan Aumiller, with any questions! She can be found at: ColumbusChapter@fshdsociety.org We look forward to seeing you…Find out more »
Join radio host Tim Hollenback via Facebook Live on Wednesday, September 25, at 9:00 PM EST for a conversation with Dr. David Younger, a clinical psychologist based in Austin, Texas. He was diagnosed with FSHD at age four, the same time as his mother and grandmother were also found to have the condition. In a compelling blog post, he shared his personal journey of learning to accept his life with FSHD and moving beyond it to finding well-being and becoming a clinical psychologist.…Find out more »
Join host Tim Hollenback on October 30, 2019 on Facebook Live for a conversation with the fantastic Alan Brown. Originally scheduled for July 31, the show had to be rescheduled due to technical difficulties. Alan, of Holicong, Pennsylvania, is the director of business development at NFL Films, the company that produces commercials, television programs, feature films, and documentaries for and about the National Football League (NFL). Alan Brown of NFL Films. Alan has FSHD in his family. “My great-grandmother, grandmother, mother and…Find out more »