Welcome to the Idaho Chapter!
Founded by Minette Hale in January 2020, the goals of the Chapter Program here in the Idaho area are to:
- Increase awareness and educate families throughout Idaho.
- Help build connections among patients, care givers, health care providers and others affected by this disease.
- Harness the power of those shared connections allowing us all to gain strength, support and encouragement as we push forward in finding a cure for FSHD.
- Last but not least let’s HAVE SOME FUN while we accomplish these goals!
Please join our chapter via the "Stay informed on Local Activities" form on the right. We'll make sure you receive updates about future events and plans!
Please visit our Facebook page! @FSHD-Society-Idaho
The 2023 Intermountain Walk & Roll to Cure FSHD!
Our 2023 annual Intermountain Walk & Roll to Cure FSHD was an amazing success this year! Thank you to everyone who participated and helped raise awareness and funds towards reaching our goal of a cure by 2025. Fundraising will continue through the end of the year.
Learn more about the 2023 Walk & Roll to Cure FSHD HERE!
Stay tuned as we begin planning for our 2024 Walk & Roll to Cure FSHD. If you would like to volunteer to support the 2024 Walk & Roll, please contact your local chapter director or walk leader.
Idaho Chapter Walk Celebration
Saturday, September 23, 2023 | 12:00 pm - 2:00 pm MT
- Register to Walk & Roll, fundraise, and come join us in person for BBQ, fun, and connection with the FSHD Community.
- Participate in the Walk & Roll virtually if you’re not comfortable committing to an in-person gathering. Everyone who registers has access to great online fundraising tools, then you can walk or roll whenever and wherever best suits you!
- Come celebrate and support our walkers/rollers/fundraisers and enjoy a great BBQ!
Regardless of registration/fundraising status for the Walk & Roll, everyone is invited to the Idaho Walk & Roll Celebration. (If you are registered for the Walk & Roll and entered an ID address, you are already "RSVP'd" for the BBQ in the park.)
Thank You for joining us for
Idaho Talent Fest 2023!
Re-watch this year's show and stay tuned for more information about 2024.
Volunteer Spotlight: Minette Hale
Hear from your local Chapter Director, Minette Hale, about her journey with FSHD, how she found her place at the FSHD Society, and her advice for folks thinking about getting more involved.
Upcoming Events
2024 North Texas Virtual Chapter Meetings
Zoom Virtual Meeting , United States8:00pm ET | 7:00pm CT | 6:00pm MT | 5:00pm PT North Texas Virtual Chapter Meeting, 7:00pm-8:00pm CT Please join us on the first Tuesday of every month for a... Read More »
Women On Wellness – When your care plan doesn’t work anymore
Zoom Virtual Meeting , United StatesFirst Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month we will continue our discussion on what to... Read More »
NYC/NJ-area Virtual Chapter Meeting – April 6, 2024
Zoom Virtual Meeting , United States9:00am ET | 8:00am CT | 7:00am MT | 6:00am PT NYC/NJ-area Virtual Chapter Meeting Saturday, April 6th, 2024 at 9am ET Dear Friends, Please plan to join us... Read More »