Welcome to the North Carolina Chapter!
Thank you for visiting the North Carolina Chapter of the FSHD Society which officially launched in October 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
Join Us for Our Next Chapter Meeting on Saturday, November 9th
This next chapter meeting will be discussing Health Insurance, the North Carolina Chapter’s 2019 Walk & Roll to Cure FSHD, next year’s agenda for the chapter, Mental Health resources, and a discussion on mental health with FSHD.
Please RSVP HERE!
Our second annual Walk & Roll to Cure FSHD took place on Saturday, Oct. 5th, 2019 at North Carolina State University – Talley Student Union! A million THANK YOU’s to everyone who was involved with this fabulous event!
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Upcoming Events › North Carolina Chapter Events
Join host Tim Hollenback on October 30, 2019 on Facebook Live for a conversation with the fantastic Alan Brown. Originally scheduled for July 31, the show had to be rescheduled due to technical difficulties. Alan, of Holicong, Pennsylvania, is the director of business development at NFL Films, the company that produces commercials, television programs, feature films, and documentaries for and about the National Football League (NFL). Alan Brown of NFL Films. Alan has FSHD in his family. “My great-grandmother, grandmother, mother and…Find out more »
This next chapter meeting will be discussing Health Insurance, the North Carolina Chapter’s 2019 Walk & Roll to Cure FSHD, next year’s agenda for the chapter, Mental Health resources, and a discussion on mental health with FSHD. A light brunch and drinks will be served. “We hope to see you there!” – Meredith Huml, North Carolina Chapter Director Click this link to RSVP.Find out more »