Welcome to the Pacific Northwest Chapter!
Thank you for visiting the Pacific Northwest Chapter of the FSHD Society which officially launched in April 2019. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
Stay tuned for more information for our 2nd Annual Walk & Roll to cure FSHD.
The Pacific NW Chapter in Pictures!
Past Events › Pacific Northwest Chapter Events
Justin and his family at the Magic Kingdom. 9-10 pm ET | 8-9 pm CT | 7-8 pm MT| 6-7 pm ET Join host Tim Hollenback on Facebook Live for a chat with Justin TurfTank VanLanduit, who was diagnosed with FSHD in 2013 at the age of 33. "It was a blow to be told I have a degenerative neuromuscular disease that has no cure," Justin recalls. "I've always been very active with sports, but worse than the realization that…Find out more »
Please mark your calendars for our first Chapter Meeting of 2020! We look forward to brainstorming about the future! A boxed lunch will be provided. Hope to see you there! ~Susie Kanewske, Pacific Northwest Chapter Director PacificNWChapter@fshdsociety.orgFind out more »
Julie Cohen, MSc, genetic counselor 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live on the first Wednesday evening every month. During the hour-long program, you'll get to meet fascinating guests discussing a wide range of topics of interest to our community. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It's a great community event!…Find out more »