Welcome to the Sacramento Chapter!
Thank you for visiting the Sacramento Chapter of the FSHD Society which officially launched in September 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
To contact us directly, please email:
SacramentoChapter@fshdsociety.org
Don’t forget to follow us on FACEBOOK
Would you like to get involved? Simply fill out the form in the sidebar. We are looking for a new chapter leader or leadership committee. Please consider joining us!
2024 Sacramento Walk & Roll to Cure FSHD
Saturday, September 7, 2024
Registration opens at 9:00am, the Walk starts at 10:00am
California State Capitol: 1315 10th St, Sacramento, CA 95814
Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social media and via email, and invite others to join you in getting us closer to a cure!
The Walk & Roll to Cure FSHD is the FSHD Society’s largest, annual fundraiser. It is also the ONLY signature event in North America dedicated to raising funds for FSHD research, cures, and community support.
Upcoming Chapter Meeting: Sat. May 4th
Saturday, May 4, 2024 from 12:00 pm - 2:00 pm PT
WHERE: Mimi's Cafe, 2029 Alta Arden Expy, Sacramento, CA 95825
DETAILS: Join us for yummy food and good conversation at Mimi's Cafe for lunch as we officially welcome our new Sacramento Chapter Director, Paul Miller. This will be a wonderful opportunity to connect with other members of the community, hear exciting updates from the Society about upcoming events, and learn about the current state of FSHD research. Additionally, FSHD Society Chief Community Officer, Beth Johnston, and Regional Director, Ashley Ferreira, will be in attendance to answer any questions from the community.
Lunch and drinks will be provided by the Society. This event is free, but RSVP is requested.
The California Walk & Roll a Tremendous Success!
The Bay Area, San Diego, Los Angeles, and Sacramento chapters came together from across the state for one, amazing day of walking & rolling to Cure FSHD! Walkers and rollers stepped out to say "FSHD Ends with Me!" and our local event raised more than $90,000 towards the campaign total, through participants and teams from across the state.
Upcoming Events
May 4th Sacramento Chapter Meeting
Mimi's Cafe, 2029 Alta Arden Expy, Sacramento, CA 95825 Mimi's Cafe 2029 Alta Arden Expy, Sacramento, CA, United States3:00-5:00pm ET | 2:00-4:00pm CT | 1:00-3:00pm MT | 12:00-2:00pm PT Sacramento Chapter Meeting Saturday, May 4, 2024 from 12:00 pm - 2:00 pm PT WHERE: Mimi's Cafe, 2029 Alta... Read More »
2024 Sacramento Walk & Roll to Cure FSHD
California State Capitol 1315 10th St, Sacramento, CA 95814 1315 10th St, Sacramento, CA, United States12:00pm ET | 11:00am CT | 10:00am MT | 9:00am PT 2024 Sacramento Walk & Roll to Cure FSHD Saturday, September 7, 2024 Registration opens at 9:00am, the Walk starts... Read More »