Welcome to the South Carolina Chapter!
Thank you for visiting the South Carolina Chapter of the FSHD Society which officially launched in October 2019. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
Volunteer Spotlight: Frank Hanley
Hear from your local chapter co-Director, Frank Hanley, on his journey with FSHD, how the South Carolina Chapter got started, and his advice for others living with FSHD.
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To contact us directly, please email: SouthCarolinaChapter@fshdsociety.org.
Please visit our Facebook page!
Please join us! Simply fill out the form in the sidebar to become a member of the South Carolina chapter.
Upcoming Events
2024 North Texas Virtual Chapter Meetings
Zoom Virtual Meeting , United States8:00pm ET | 7:00pm CT | 6:00pm MT | 5:00pm PT North Texas Virtual Chapter Meeting, 7:00pm-8:00pm CT Please join us on the first Tuesday of every month for a... Read More »
Women On Wellness – When your care plan doesn’t work anymore
Zoom Virtual Meeting , United StatesFirst Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month we will continue our discussion on what to... Read More »
NYC/NJ-area Virtual Chapter Meeting – April 6, 2024
Zoom Virtual Meeting , United States9:00am ET | 8:00am CT | 7:00am MT | 6:00am PT NYC/NJ-area Virtual Chapter Meeting Saturday, April 6th, 2024 at 9am ET Dear Friends, Please plan to join us... Read More »