With Your Host, Tim Hollenback
Before his diagnosis in 2016, Tim had never heard of FSHD. The day of the diagnosis he was shocked and scared.
He looked for support and found it with his wife, Angie and their two sons Carter and Chase. He also found it in the FSHD Society. He immediately volunteered to host a podcast and helped create a great global presence for others needing support.
When Tim is not coming to you across the airwaves, he is hard at work leading the Wisconsin Chapter group, helping others in his community connect and engage in the work of the FSHD Society. Tim is also a youth baseball coach and a member of the American Baseball Coaches Association (ABCA). He uses his coaching skills to help build the FSHD community and support others.
All of Tim's efforts, on air and on the ground, foster patient support and education, as well as raising funds to cure this disease.
Or listen wherever you tune in to your favorite podcasts - search for "FSHD Society Radio"
Past Events › FSHD Radio
Events Search and Views Navigation
9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live every Wednesday evening. Our guests are Jenny and Tony, a married couple who share information and offer encouragement on their YouTube channel in the context of their interabled relationship. Tony’s life with FSHD has set them on a journey to discover better ways to problem solve together and live life to the fullest. Learn more about them here. Mark…Find out more »
9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live every Wednesday evening. Tonight's special guest is Josh Bergmann, multi-talented singer-songwriter-mandolinist. His band Rose Valley Thorns' website states that "Joshua Bergmann's immense passion for music brought The Rose Valley Thorns together. While pouring himself into playing mandolin and leading the vocals for this band, Joshua is also a respectable multi-instrumentalist, performer, and songwriter in various other genres. Pulling from…Find out more »
9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live every Wednesday evening. Our guest tonight is Kent Drescher, PhD, co-director of the FSHD Society's Bay Area chapter and a retired clinical psychologist. He will talk about acceptance and commitment therapy (ACT), which has been shown in a clinical trial to be beneficial to people with FSHD. He will discuss his own experience of living with FSHD, and share…Find out more »