With Your Host, Tim Hollenback
Before his diagnosis in 2016, Tim had never heard of FSHD. The day of the diagnosis he was shocked and scared.
He looked for support and found it with his wife, Angie, and their two sons Carter and Chase. He also found it in the FSHD Society. He immediately volunteered to host a podcast which has grown in popularity and increased its impact ever since. Tim's efforts have helped to create a great global presence for others needing support.
When Tim is not coming to you across the airwaves on FSHD Radio, he is hosting the Inner Strength podcast or hard at work leading the Wisconsin Chapter group, helping others in his community connect and engage in the work of the FSHD Society. Tim is also a youth baseball coach and a member of the American Baseball Coaches Association (ABCA). He uses his coaching skills to help build the FSHD community and support others.
All of Tim's efforts, on air and on the ground, foster patient support and education, as well as raising funds to cure this disease.
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Past Events › FSHD Radio
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9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Sue Drescher Join host Tim Hollenback on YouTube on the 2nd Tuesday of every month. This month's episode features Sue Drescher, co-director of the Society's Bay Area chapter and co-moderator of the monthly Sharegiver Hour, a virtual support group for family members who are providing care for a person with FSHD. Sue will share her story and why she decided to start the Sharegiver Hour.…Find out more »
9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Our guest this evening is Carlos Romero, who has amazed us over the past several years by becoming a national paraclimbing champion and being featured in People magazine for losing 225 pounds following his FSHD diagnosis in 2012. He recently started his own podcast, Crappy Comics, a "podcast about comedy and courage." We can't wait to catch up with him! Join host Tim Hollenback on…Find out more »
9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT LISTEN HERE Note: our original program featuring the FSHD Society's Jamshid Arjomand, PhD, chief science officer, has been postponed until later this year. Instead, we are delighted to welcome Rabbi Haviva Ner-David, a long-time member of the FSHD Society whose first novel, Hope Valley, is being published this month. Haviva drew on her experience living with FSHD to create two compelling Israeli women, one Jewish…Find out more »