Browsing “General - FSHD Society”

Christine Hoene: Always a Beginner

Verfasst am September 18th, 20259/18/25

Christine’s father was diagnosed with FSHD in his late 40s. Four years later he was reliant on a cane and, within ten years, a wheelchair.  When Christine herself was diagnosed […]

Abgelegt unter: Allgemein, Leben mit FSHD

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Joanne Dalessandro has been busy!

Verfasst am August 12th, 20258/12/25

by Chelsea Moeller, Development Director – FSHD Society Retiree Joanne Dalessandro has been busy – busier than she ever was during her 50-year career in sales. Between weekly medical appointments, […]

Abgelegt unter: Fundraising & Veranstaltungen, Allgemein, Leben mit FSHD

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Don Nemke: Eight Decades of Determination

Verfasst am Juni 18th, 20256/18/25

by Chelsea Moeller Don Nemke recently turned 80. If you’re lucky enough to sit with him awhile, he’ll regale you with small town tales of 10-year-olds driving tractors and growing […]

Abgelegt unter: Allgemein

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This is how we win

Verfasst am Mai 19th, 20255/19/25

Every move we make drives us toward our goal By June Kinoshita, FSHD Society There is so much going on at the FSHD Society that for someone observing from the […]

Abgelegt unter: Nachrichten der FSHD-Gesellschaft, Allgemein, Medien und PR

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Brand Launch

Verfasst am Mai 1st, 20255/1/25

A New Look. A Stronger Voice. The Same Mission. We’ve refreshed our brand to better reflect who we are, the impact we make together, and the future we’re building with […]

Abgelegt unter: Allgemein

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