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Thank you for your generous support!
To make a gift by phone, please call us at: 781-301-7301.
To make a gift by check, please mail to:
450 Bedford Street
Lexington, MA 02420
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Jennifer Jo Brout
"Kind, caring organization with a no-nonsense focus on a cure. Money goes to research. Research leads to results! Join, help, learn, give anything you can and see FSHD cured."
Michael Thatcher, President & CEO of Charity Navigator
“Only 2% of the charities we rate have received at least 8 consecutive 4-star evaluations, indicating that the FSH Society outperforms most other charities in America. This “Exceptional” designation from Charity Navigator differentiates FSH Society from its peers and demonstrates to the public it is worthy of their trust."
“I specifically chose to support the FSH Society over similar organizations for several reasons. It was founded in 1991 by a mother and son, both severely affected with FSHD, who understood the wide-ranging implications of FSHD. Year after year the FSHD Society has run an efficient organization receiving 4 Stars from Charity Navigator. I like the FSHD Society Scientific Advisory Board’s approach to awarding grants to scientists worldwide and fostering collaboration. In addition, they have been wonderful patient advocates and offer conferences, support systems, and resources introducing scientists to patients and their families. Although this is a dreadful disease that slowly robs its patients of the ability to perform everyday tasks, the one shining light is the many friends I have made all over the world because of the FSHD Society’s conferences and social network of chatrooms, Facebook, private groups, and direct personal connections.”