The FSHD Advocate Magazine

Published three times per year, the FSHD Advocate is the voice of our community, educating and empowering us all to take control of our FSHD journey and power the path towards a cure. Each issue provides the latest research news, stories about our movers and shakers, practical tips for living with FSHD, resources, and more.

The background is a collage of photos from the 2025 Walk & Roll to Cure FSHD season with the Advocate logo above them. Large text reads "Powering the Path Forward." Small text reads "Pillars of Progess." This text is above three arrows directed upwards. These arrows are orange (left), green (middle), and yellow (right). Read left to right they read: Advocacy; Community; Research.

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Read our latest issue

Get inspired, informed, and involved—dive into the latest stories and breakthroughs driving progress for the FSHD community.

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