DIY & Endurance Fundraising is Gaining Momentum!
by Kim Shanley We’re only halfway through 2025, and it’s already been an incredible year for our DIY and endurance community at the FSHD Society. Kicking things off, Michael Ahlers […]
Θυμόμαστε τον Dan Perez, συνιδρυτής της FSHD Society και κινητήριος δύναμη στην έρευνα και την υπεράσπιση της FSHD.
by Kim Shanley We’re only halfway through 2025, and it’s already been an incredible year for our DIY and endurance community at the FSHD Society. Kicking things off, Michael Ahlers […]
By Jess Wright The 2025 Walk & Roll to Cure FSHD season is right around the corner, and we’re already feeling the excitement build. Across the country, teams are forming, […]
Big news! We’ve teamed up with the online fundraising platform Omaze to give you the chance to meet Dan Levy, of Schitt’s Creek. Dan is the co-creator and star of […]
This September and early October, the FSH Society will host its new signature fundraising event, the Walk & Roll to Cure FSHD in five communities from coast to coast. These Volunteer Leaders […]
You inspire me! You have faithfully supported, worked, and engaged your network and loved ones to join our quest for treatments and a cure for FSHD. I want to acknowledge […]