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Recordando a Dan Perez, cofundador de la FSHD Society e impulsor de la investigación y la defensa de la FSHD.

Join us for The Most Beautiful Urban Marathon in America®️, winding through downtown districts and crossing the Mississippi River.
The FSHD Society will participate in this event to raise funds for – and awareness about – FSHD treatments and a cure.
Twin Cities Marathon website. For more information on how to participate, or how to support this fundraiser, please contact Kim Shanley at Kim.Shanley@FSHDSociety.org.