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Recordando a Dan Perez, cofundador de la FSHD Society e impulsor de la investigación y la defensa de la FSHD.
This week, Spencer Wyckoff competed on NBC’s “American Ninja Warrior” to raise awareness and funds for the FSH Society. Before taking the course, Spencer and his sister, Carden, described their family’s experience with FSHD. If you missed it, watch a recap of their inspirational story here.
Carden created this video to thank their supporters and to encourage everyone to take part in World FSHD Day on June 20, 2016.
Thank you, Spencer and Carden, for letting us be a part of your journey and for bringing FSHD awareness to millions of Americans!