Navegación “enero, 2021 - FSHD Society”

COVID-19 Vaccine Q&A

This Q&A is based on the December 9 webinar with Rabi Tawil, MD, and Ghinwa Dumyati, MD, from the University of Rochester Medical Center, and the January 15 webinar hosted […]

Resonancia magnética en la investigación de la distrofia muscular FSH

  This month’s FSHD University webinar (video above) provided an outstanding, nontechnical explanation of magnetic resonance technology (MRI) and how it is being applied in the Fulcrum Therapeutics clinical trial […]

Legacy planning made simpler

The Mattering Effect

“When one door of happiness closes, another opens. But often we look so long at the closed door that we don’t see the one which has been opened for us.” […]

Embrace your experience

by Lori Brant There were two ways to walk with my walker down the hallway to my condo. The first way kind of went like this: “Man, I am tired. […]