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Con el objetivo de acelerar el tratamiento y la atención de las enfermedades raras Véase el comunicado de prensa sobre el lanzamiento de PaLaDIn La Sociedad FSHD se embarca en una emocionante colaboración internacional para acelerar el desarrollo […]
In December, our Women on Wellness Zoom group hosted Loralei Thornberg, MD, an ob/gyn at the University of Rochester. She is a rock star! She addressed issues in women’s health […]
So you don’t have to journey by yourself by Anna Gilmore, FSHD Society At the FSHD Society, the families we serve always come first. With that in mind, we are […]
A new short film directed by Academy Award-winning New Zealand filmmaker Taika Waititi features Dr. Tristram Ingham, a physician and disability advocate living with FSHD. The film was made in […]
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