Welcome to the Central Texas Chapter

The Central Texas chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.

Ofrecemos apoyo, compartimos recursos locales y le mantenemos informado sobre las últimas investigaciones y cuidados. Tanto si le acaban de diagnosticar como si lleva años viviendo con FSHD, estamos aquí para apoyarle en cada paso del camino.

Únete a tu sección local y descubra cómo podemos ayudarle en su proceso con la FSHD.

Conoce al equipo

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  Rachel Sartin

  Rachel lives in Austin, Texas, with her husband Rob and their two sons, one in high school and one in college. After studying computer science in college and graduate school, Rachel worked in various software companies, focusing on software development as both a developer and a manager. She recently retired and now spends her time with family and volunteering.

  Rachel was diagnosed with FSHD shortly after high school. As Chapter Director for the FSHD Society, she is excited to provide support and share helpful information with those affected by FSHD, as well as their friends and families.

  Contact Rachel directly o visite el Central Texas Facebook page.