Capítulo de Colón

Conectar. Apoyar. Informar. Fortalecer.

Welcome to the Columbus Chapter

The Columbus chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.

Ofrecemos apoyo, compartimos recursos locales y le mantenemos informado sobre las últimas investigaciones y cuidados. Tanto si le acaban de diagnosticar como si lleva años viviendo con FSHD, estamos aquí para apoyarle en cada paso del camino.

Únete a tu sección local y descubra cómo podemos ayudarle en su proceso con la FSHD.

Conoce al equipo

  • Heather Kalista

    Heather Kalista

    Heather Kalista is from Westerville, Ohio, and became involved with the FSHD Society in 2016 when FSHD impacted her family. Grateful for the support and connections they found, Heather is now focused on helping others in the community. She is committed to being a source of information and support for those facing similar challenges.

    With a strong belief in the importance of hope, Heather is excited to work with the FSHD Society to help others as they work toward treatments for FSHD. She looks forward to continuing her efforts to make a difference for those affected by the condition.

    Contact Heather directly o visite el Columbus Facebook page.

Hazte voluntario del Capítulo

While Heather is powering the path forward, we’re always looking for passionate individuals to help with planning events, spreading the word, and working on other projects. Your involvement will make a big difference in growing the chapter and supporting those affected by FSHD.

Póngase en contacto con Beth Johnston, jefa de Liderazgo Voluntario. para aprender cómo puedes generar un impacto y participar.

Upcoming Columbus Chapter Events