Welcome to the East Tennessee Chapter

The East Tennessee chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.

Ofrecemos apoyo, compartimos recursos locales y le mantenemos informado sobre las últimas investigaciones y cuidados. Tanto si le acaban de diagnosticar como si lleva años viviendo con FSHD, estamos aquí para apoyarle en cada paso del camino.

Únete a tu sección local y descubra cómo podemos ayudarle en su proceso con la FSHD.

Conoce al equipo

The East Tennessee Chapter is made up of people who are passionate about helping those with FSHD. We’re currently seeking individuals who are interested in taking on leadership roles, whether that’s by planning events, leading projects, or guiding the chapter’s direction. If you’re interested in helping in other ways, we’d love to hear from you too!

By getting involved, you’ll help make the chapter an even better place for everyone affected by FSHD. We’re always open to new ideas to help us connect and support one another.

Póngase en contacto con Beth Johnston, jefa de Liderazgo Voluntario. para aprender cómo puedes generar un impacto y participar.