Welcome to the Greater Philadelphia Chapter

The Greater Philadelphia chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.

Ofrecemos apoyo, compartimos recursos locales y le mantenemos informado sobre las últimas investigaciones y cuidados. Tanto si le acaban de diagnosticar como si lleva años viviendo con FSHD, estamos aquí para apoyarle en cada paso del camino.

Únete a tu sección local y descubra cómo podemos ayudarle en su proceso con la FSHD.

Conoce al equipo

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  Bill MacLean

  Bill has been a member of the FSHD Society for over a decade and understands how valuable it is to have a local community that shares experiences, offers strategies to manage FSHD, and supports research to improve the lives of those affected. Facing this disease alone can be challenging, but being part of a community that understands makes a world of difference.

  Bill’s wife has been a constant source of support throughout his journey with FSHD. Together, they’ve faced many challenges, and her encouragement and belief in the importance of the FSHD Society have been vital to him. With her support, Bill has been able to stay connected to the community and continue his efforts to raise awareness and provide support for others affected by FSHD.

  Contact Bill directly o visite el Greater Philadelphia Facebook page.