Welcome to the Michigan Chapter

The Michigan chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.

Ofrecemos apoyo, compartimos recursos locales y le mantenemos informado sobre las últimas investigaciones y cuidados. Tanto si le acaban de diagnosticar como si lleva años viviendo con FSHD, estamos aquí para apoyarle en cada paso del camino.

Únete a tu sección local y descubra cómo podemos ayudarle en su proceso con la FSHD.

Conoce al equipo

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  Andrea (Dre) Vanbeek y Alissa Lowman

  Andrea (Dre) Vanbeek and her sister, Alissa Lowman, are the Co-Chapter Directors for the Michigan chapter. In September 2021, Dre’s son, Crew, was diagnosed with FSHD Type I at the age of 12. This diagnosis led Dre and Alissa to dive into research and find ways to support Crew and others facing the same challenges. Their goal is to connect families with resources, information, and a community of support, offering hope in a time of uncertainty.

  Dre lives in West Michigan, where she works as a registered nurse and is a proud mom of four children, including Crew. Alissa lives in the Detroit area, where she recently retired from teaching and has three children. Both Dre and Alissa are passionate about helping families navigate the journey of FSHD and raising awareness in their community.

  Contact Dre & Alissa directly o visite el Michigan Facebook page.