Welcome to the Minnesota Chapter

The Minnesota chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.

Ofrecemos apoyo, compartimos recursos locales y le mantenemos informado sobre las últimas investigaciones y cuidados. Tanto si le acaban de diagnosticar como si lleva años viviendo con FSHD, estamos aquí para apoyarle en cada paso del camino.

Únete a tu sección local y descubra cómo podemos ayudarle en su proceso con la FSHD.

Conoce al equipo

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  Jacob Wise

  Jacob Wise lives in Edina, MN, with his wife and three children. He was diagnosed with FSHD in 2001 at the age of 23. As his condition progressed, Jacob felt a strong desire to give back to the FSHD community. When the opportunity arose to help create a Minnesota Chapter, he was eager to contribute and use his experience to support others.

  Jacob is excited to connect with others affected by FSHD, share resources, and build a local support network. He is dedicated to advancing treatments for FSHD by fostering a strong, supportive community.

  Contact Jacob directly o visite el Minnesota Facebook page.