Welcome to the NE Florida Chapter

The Northeast Florida chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.

Ofrecemos apoyo, compartimos recursos locales y le mantenemos informado sobre las últimas investigaciones y cuidados. Tanto si le acaban de diagnosticar como si lleva años viviendo con FSHD, estamos aquí para apoyarle en cada paso del camino.

Únete a tu sección local y descubra cómo podemos ayudarle en su proceso con la FSHD.

Conoce al equipo

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  Christi Thissen

  Christi Thissen is proud to be part of the local Northeast Florida FSHD chapter and is passionate about bringing people together. Diagnosed with FSHD in 1998 at the age of 19, she understands the challenges that come with the condition. Christi owns an IT Managed Services company in Jacksonville, which she runs with her big brother, who also has FSHD.

  Through the chapter, Christi helps create a space where people affected by FSHD can share stories, exchange resources, and support one another. She believes that building a strong local community helps people navigate their journey with FSHD and allows them to connect with others who are facing similar challenges.

  Contact Christi directly o visite el Northeast Florida Facebook page.