Welcome to the Nevada Chapter

The Nevada chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.

Ofrecemos apoyo, compartimos recursos locales y le mantenemos informado sobre las últimas investigaciones y cuidados. Tanto si le acaban de diagnosticar como si lleva años viviendo con FSHD, estamos aquí para apoyarle en cada paso del camino.

Click the button below to learn how we can support you on your FSHD journey.

Join Your Local Chapter

Conoce al equipo

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  Leslie Truman

  Leslie, a member of the Nevada Chapter, has experienced signs of FSHD throughout her life, especially with a family history of the condition. For many years, she tried to ignore it, hoping it would go away. In 2020, she faced the reality of her condition and discovered the FSHD Society. The work being done inspired her to get involved.

  A native of Las Vegas, Leslie looks forward to connecting with others in the area who are affected by FSHD. She and her husband are proud to raise their family in Las Vegas, where she is a mom to six children and two grandchildren. Leslie is dedicated to building a strong, supportive community for those living with FSHD.

  Contact Leslie directly o visite el Nevada Facebook page.