Capítulo de Carolina del Norte

Conectar. Apoyar. Informar. Fortalecer.

Welcome to the North Carolina Chapter

The North Carolina chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.

Ofrecemos apoyo, compartimos recursos locales y le mantenemos informado sobre las últimas investigaciones y cuidados. Tanto si le acaban de diagnosticar como si lleva años viviendo con FSHD, estamos aquí para apoyarle en cada paso del camino.

Únete a tu sección local y descubra cómo podemos ayudarle en su proceso con la FSHD.

Conoce al equipo

  • Michael King

    Michael King

    Michael King is from Charlotte, North Carolina, and was diagnosed with FSHD in early 2024. After his diagnosis, he reached out to the FSHD Society for support and is grateful for their guidance in navigating the disease. Connecting with others in the FSHD community has become an important part of his journey and has helped him cope with the challenges of the condition.

    As Chapter Director, Michael is eager to support and make a positive impact on other FSHD patients, their families, and friends. He feels fortunate for the opportunity to serve in this role and looks forward to building connections within the FSHD community.

    Contact Michael directly o visite el North Carolina Facebook page.

Hazte voluntario del Capítulo

While Michael is powering the path forward, we’re always looking for passionate individuals to help with planning events, spreading the word, and working on other projects. Your involvement will make a big difference in growing the chapter and supporting those affected by FSHD.

Póngase en contacto con Beth Johnston, jefa de Liderazgo Voluntario. para aprender cómo puedes generar un impacto y participar.

Upcoming North Carolina Chapter Events