Welcome to the Ontario Chapter

Fundación FSHD Canadá se ha asociado con la Sociedad FSHD para apoyar y hacer crecer las comunidades FSHD en todo Canadá con el objetivo común de ofrecer tratamientos y una cura para la distrofia muscular FSH.

The Ontario chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.

Ofrecemos apoyo, compartimos recursos locales y le mantenemos informado sobre las últimas investigaciones y cuidados. Tanto si le acaban de diagnosticar como si lleva años viviendo con FSHD, estamos aquí para apoyarle en cada paso del camino.

Click the button below to learn how we can support you on your FSHD journey.

Join Your Local Chapter

Conoce al equipo

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  Carrie Wilkinson

  Carrie lives on a hobby farm just north of Toronto with her husband, John, and their two children. Their daughter was diagnosed with FSHD at the age of six, and shortly after, John was also diagnosed with the condition. This personal experience has inspired her to be a strong advocate for those affected by FSHD.

  As an Occupational Therapist specializing in neuro rehabilitation, Carrie is dedicated to helping her patients reach their goals. She is equally passionate about building a collective voice for the FSHD community in Ontario. While Ontario covers a large area, Carrie believes the community will come together to support one another, share resources, and work toward a future with treatments for FSHD.

  Contact Carrie directly o visite el Ontario Facebook page.