Welcome to the San Diego Chapter

The San Diego chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.

Ofrecemos apoyo, compartimos recursos locales y le mantenemos informado sobre las últimas investigaciones y cuidados. Tanto si le acaban de diagnosticar como si lleva años viviendo con FSHD, estamos aquí para apoyarle en cada paso del camino.

Únete a tu sección local y descubra cómo podemos ayudarle en su proceso con la FSHD.

Conoce al equipo

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  Amy Bekier

  Amy Bekier’s journey with FSHD has inspired her to advocate for others facing similar challenges. After FSHD began affecting her and her family, she adopted the motto, “I can no longer sit and cope but must get active and hope.” When Amy moved to San Diego, she became both a national Board member and the San Diego Chapter Director of the FSHD Society, where she helps support others living with the condition.

  Before focusing on FSHD advocacy, Amy had a successful career as an insurance agent and Chartered Life Underwriter. She is also an award-winning artist who works with soft pastels and oil. When she could no longer use her right arm, Amy taught herself to paint with her left hand. In addition to her artistic pursuits, Amy enjoys modified recreational golf and is a proud member of the Bernardo Heights Country Club.

  Contact Amy directly o visite el San Diego Facebook page.