Welcome to the Utah Chapter

The Utah chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.

Ofrecemos apoyo, compartimos recursos locales y le mantenemos informado sobre las últimas investigaciones y cuidados. Tanto si le acaban de diagnosticar como si lleva años viviendo con FSHD, estamos aquí para apoyarle en cada paso del camino.

Únete a tu sección local y descubra cómo podemos ayudarle en su proceso con la FSHD.

Conoce al equipo

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  Allison Calder

  Allison is proud to be part of the strong FSHD community in Utah. FSHD became a part of her life in 2013 when her husband, Curtis, was diagnosed at age 29. As a nurse, she immediately started learning about the disease and how it would affect their family. The FSHD Society has been an invaluable resource, and being part of this community has supported her family in many ways.

  Allison and Curtis live in Salt Lake City with their four children, where they founded Anson Calder shortly after Curtis’s diagnosis. The business creates high-quality leather goods and helps fund the mission of the FSHD Society, making a positive impact on the community.

  Contact Allison directly o visite el Utah Facebook page.