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World FSHD Day, a global movement to raise awareness of FSHD, occurs on June 20. From orange slice selfies and proclamations to lit up buildings, World FSHD Day brings together […]
The FSHD Society is deeply grateful to Kent and Sue Drescher for their years of dedicated service as leaders of the Bay Area Chapter. On Sunday, May 22, they officially […]
The FSHD Industry Collaborative is a first-of-its-kind, multi-stakeholder initiative designed to improve how FSHD clinical trials are designed, executed, and evaluated RANDOLPH, Mass. and VANCOUVER, BC, April 8, 2026 /PRNewswire/ […]
Dr. Lucienne Ronco, Chief Science Officer of the FSHD Society Originally published on March 19, 2026 Edited for clarity as of March 20, 2026 Today we received news that Roche […]
Dear members of the FSHD community, Following your request for updates about our FSHD clinical development programme, today I share the news that we have made the difficult decision not […]
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