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by Kayleigh Worek, BetterLife FSHD Manager What BetterLife FSHD data is telling us this Mental Health Awareness Month Living with FSHD can impact more than just muscles. When asking people […]
May is National Mental Health Awareness Month, a time to recognize that well-being includes both physical and emotional health. For individuals living with FSHD, mental health can be an important […]
By Leah Lee Originally posted to the Muscular Dystrophy Coalition Facebook Group on July 26, 2025. Loving someone with FSHD means learning to live in constant motion. Everything is always […]
... cuando Archer Sverdrup, de St. Louis, Misuri, me diagnosticó por primera vez FSHD (de aparición infantil). La progresión es impredecible. A veces puede pasar un año con solo una progresión leve. Otras veces, cada [...]
Friendships are built intentionally by Gregg Lichtenstein, Margate City, New Jersey The 1970s band Three Dog Night proclaimed that “One is the loneliest number that you’ll ever do.” For all […]
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