What a New Study on FSHD and Mortality Means for Our Community
by Amanda Hill, Research & Care Programs Officer at the FSHD Society, and Ally Roets, Parent, Caregiver, CureFSHD for All Advocate and Parents’ Roundtable Leader Many of us in […]
by Amanda Hill, Research & Care Programs Officer at the FSHD Society, and Ally Roets, Parent, Caregiver, CureFSHD for All Advocate and Parents’ Roundtable Leader Many of us in […]
By Dr. Lucienne Ronco This is a question we often hear from FSHD patients. Human hormones, like estrogen, impact muscle health in general, not just in disease. In healthy muscle, […]
By Selina Lai, MS, Nutritionist In the past year there have been 2 investigative surveys of the lead content of protein powder supplements published by The Clean Label Project1 and […]
− Primer paciente con distrofia muscular facioescapulohumeral (FSHD) tratado con células progenitoras modificadas del revestimiento umbilical (UMPC) de Restem-L. − El estudio de fase 1/2a evaluará la seguridad y la eficacia preliminar de […]
Por Ranae Beeker, MSN, RN. Escrito desde la perspectiva de la concienciación y la importancia del respeto. Entendemos que este tema no es de interés para toda nuestra comunidad […]