Recordando a Dan Perez, cofundador de la FSHD Society e impulsor de la investigación y la defensa de la FSHD.
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Escrito por Howard Chabner, Vicepresidente de la Junta, y compartido en nombre de toda la Junta Directiva de la FSHD Society La Junta Directiva de la FSHD Society está profundamente entristecida [...].
While his family and our community morns the loss, I want to honor the life of Dan Perez, a man whose vision, determination, and heart changed the course of FSHD […]
by Beth Johnston Earlier this month, we added the 4th Canadian Chapter to the roster of our growing FSHD Communities! The Quebec Chapter is led by father/son duo Sylvain and […]
By June Kinoshita As I step into a new chapter of my life, I find myself reflecting on the extraordinary 13-year journey I’ve had with the FSHD Society. What began […]
By June Kinoshita, FSHD Society It is with deep sadness and gratitude that the FSHD Society honors the memory of beloved community member and long-time volunteer, Ann Biggs-Williams, who passed away […]
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