Explorar artículos etiquetados “social media - FSHD Society”

#FSHDselfies Shoot a Selfie, Raise Awareness  

Publicado el julio 6th, 20147/6/14

selfie noun, informal – a photograph that one has taken of oneself, typically one taken with a smartphone or webcam and uploaded to a social media website – Oxford Dictionary Our national […]

Archivado en: Noticias de la Sociedad FSHD

Etiquetas: campañas de concientización, social media

Seguir leyendo

Twitter blows up for Phil’s Jam

Publicado el febrero 27th, 20142/27/14

The first annual “Phil’s Jam for FSH” drew a crowd of music lovers to the Wild Wing Cafe in Franklin, Tennessee, last night. Using the occasion to generate awareness about […]

Archivado en: Recaudación de fondos y eventos

Etiquetas: benefit concert, organizaciones benéficas, Distrofia muscular FSH, FSHD, eventos para recaudar fondos, social media

Seguir leyendo