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Now available. Read our 2025 Impact Report

Join us for a Virtual Meeting!
Please join us for our “Welcome to 2024” meeting, with lots of exciting news about current and upcoming clinical trials, as well as our guest presenter, Anna Gilmore! Anna has moved to the new position of FSHD Navigator. As Navigator, she helps families by providing resources and information to answer the many questions that arise when dealing with this disease, and will elaborate in more detail about her new role. Come join us for our first meeting of this new year!
Our Zoom meetings are an important part of building and maintaining our community, as well as staying informed.
So, mark your calendar for Wednesday, January 24th, and RSVP HERE via the below button to receive the Zoom link, and a reminder about the meeting.
¡Esperamos verte allí!
Kathy Senecal, New England Chapter Director