Hora de CarePartner

8:00 – 9:00 p. m. ET | 7-8 p. m. CT | 6-7 p. m. MT | 5-6 p. m. PT

This monthly meeting is for those of you who are providing care to loved ones with FSHD. This virtual meeting is a safe and supportive space to share your experiences, challenges, and helpful tips with other care partners (the term we prefer to “caregiver” because caring is a partnership, not a one-way street).

Por favor, respeta nuestras reglas que restringen esta reunión a los cuidadores. Como no queremos publicar el enlace de la reunión de Zoom (para evitar “Zoom bombers”), regístrate haciendo clic en el botón de abajo.