5:00 p. m. ET | 4:00 p. m. CT | 3:00 p. m. MT | 2:00 p. m. PT
“Marion or the Metamorphosis”
Monday, November 10th, 2025
From 4:00 p.m. – 5:00 p.m. EST Watch the Film
From 5:00 p.m. – 6:00 p.m. Wellness Session Discussion (everyone welcome)
The next FSHD Wellness Hour on November 10, 2025 will be a Movie Night and feature an amazing new film focused on one woman’s journey with FSHD!
From 4:00 p.m. – 5:00 p.m. EST (one hour before the regular starting time for our monthly Wellness Session, and in place of the open discussion that occurs from 4:30 p.m. – 5:00 p.m. facilitated by Rick Whitehead), we will stream the film “Marion or the Metamorphosis,” which is 52 minutes long (brought to us by FSHD Society). The regularly scheduled Wellness Session (from 5:00 p.m. – 6:00 p.m.) will feature a discussion of the movie.
Movie Summary: “Marion or the Metamorphosis” is a documentary film by Laëtitia Moreau and Marion Sellenet that follows the life of Marion Sellenet, a 35-year-old artist who lives with facioscapulohumeral muscular dystrophy (FSHD). The film chronicles Marion’s personal journey, exploring themes of identity, transformation, and resilience as she navigates living with a progressive disease. It captures Marion’s creative process, her daily challenges, and her evolving self-image, while also shedding light on the impact of FSHD on her life as an artist and individual. Through candid and intimate storytelling, the documentary reflects on how Marion adapts to physical limitations, reinventing herself and her art, ultimately celebrating her courage and inner metamorphosis.
We hope that you will join us. If you plan to come to the Wellness Session Discussion Group and have not yet seen the film, be sure to join us at 4:00 p.m. EST to see the film!
Feel free to invite family members as well as friends to join us for both hours of this Wellness Session. The film is beautiful as well as informative, and we’re sure that you will enjoy your time.
Remember to mark your calendar about the timing for this event!
For our European friends, don’t forget that the US has changed their clocks back to regular standard time, from day-light savings time.
Nuestra reunión mensual de Zoom sobre bienestar se celebra el segundo lunes de cada mes, de 5:00 a 6:00 p. m. (hora del Este). Cada mes, tendremos un tema para iniciar la conversación, pero se trata de una reunión informal y, si la discusión se desvía hacia otros temas, ¡no pasa nada! Esperamos que te pases por allí para disfrutar de la compañía de algunas de las personas maravillosas de nuestra comunidad.
Abrimos la sala de Zoom media hora antes (4:30 p. m. ET). para que los miembros puedan disfrutar de un foro abierto en el que debatir cualquier tema que les interese. Rick Whitehead estará allí para darles la bienvenida. La Hora del Bienestar se ha convertido en un evento tan popular que nunca tenemos tiempo suficiente para que todos puedan compartir lo que piensan, por lo que hemos pensado en probar este enfoque.
Si está interesado, regístrese haciendo clic en el enlace que aparece a continuación. Solo necesitas registrarte una vez para la serie mensual. Recibirás notificaciones de Zoom con la información de la reunión.
¿Necesitas consejos sobre cómo usar las funciones de Zoom? Aquí está un video que explica muchas características básicas.
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