¡Día Mundial de la FSHD!

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Jun 20, 2023 @ 12:00 am - 11:59 pm

Join us for the annual World FSHD Day to raise awareness of FSHD globally over social media on June 20th!

Learn about the orange slice selfie campaign and download our toolkit HERE.
We will also be celebrating this day with special FSHD Radio mini-episodes that will be released throughout the day.
More details to come!

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