Early-Onset Parent Roundtable – Planning for FSHD Connect

8:00 p. m. ET | 7:00 p. m. CT | 6:00 p. m. MT | 5:00 p. m. PT

As we plan the 2024 FSHD Connect conference–the largest gathering for patients, families, clinicians, and researchers–we want to provide activities and spaces for kids and teens. Join us to learn more about FSHD Connect and help us brainstorm fun and impactful ideas for families.

Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month, where parents meet to exchange ideas, offer support, and gain insight to keep our children with FSHD as healthy and mobile as possible. We will have plenty of time for parents to exchange ideas and ask/answer questions from other parents.

Nos encantaría conocer tu opinión y contar con tu participación. Únete a nosotros y comparte tus ideas, preguntas, respuestas, consejos y trucos.

Once you join the group by submitting your RSVP for a meeting, you will not need to register for each month’s meeting. You will automatically receive monthly reminders and call-in/Zoom information. If you participated in one of our meetings in 2023, you are automatically a part of the group and do not need to register again. You may change your group membership at any time by emailing us at info@fshdsociety.org.

Ally Roets y Sam Ray
Directores del capítulo de inicio temprano

Más información sobre el Capítulo sobre la aparición temprana