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18:00 CET | 17:00 Reino Unido | 12:00 ET | 11:00 CT | 10:00 MT | 9:00 PT

Chris Haven, from the Pacific Northwest chapter, will share her experiences working out with Alex Walker, a personal trainer and strength coach. She will share a video and discuss her FSHD and fitness journey. Alex unfortunately can’t join us live, but here is a little bit about him, in his words: “I have been weightlifting most of my life and started my personal training business 12 years ago while also coaching football and lacrosse for several years. As a USAW certified performance coach, I can teach and refine weightlifting techniques, assess mobility, effectively communicate with my clients, and implement optimum training plans. This combined with being also a Bioforce certified conditioning coach, allows me to truly assess the needs of my clients. Over the past several years, I have become a rehabilitation specialist working with FSHD muscular dystrophy clients increasing their functional strength and improving their daily lives.”

Para las personas que viven con FSHD y están interesadas en el ejercicio y el acondicionamiento físico, nos reunimos el segundo y cuarto jueves de cada mes a las 12:00 p. m. (mediodía), hora del este de EE. UU. Venga vestido para hacer ejercicio y traiga consigo cualquier dispositivo de seguridad y asistencia que necesite. No todos los ejercicios son apropiados o seguros para todas las personas, así que utilice su mejor criterio y consulte a su proveedor de atención médica.
Por favor, traiga una silla o taburete estable (el respaldo de la silla es opcional).