- Vivir con FSHD
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- Participa
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- Investigación y asistencia clínica
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- Noticias y medios de comunicación
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Now available. Read our 2025 Impact Report

Wissahickon Valley Public Library Community Room – 650 Skippack Pike, Blue Bell PA 19422
***Option to attend virtually via Zoom (RSVP to receive the link)
We will gather to catch up, socialize, and discuss BetterLife – a new platform dedicated to both research and empowering those living with FSHD.