- Vivir con FSHD
-
- Participa
-
- Investigación y asistencia clínica
- Quiénes somos
- Noticias y medios de comunicación
- Eventos
- Blog
- BetterLife
- Donar hoy
Design a shirt for the 2026 T-Shirt Design Contest. Submissions close Feb 28!

We hope you can join us for a virtual chapter meeting! We will be discussing our plans for 2023, clinical trial updates and will be learning about our virtual communities and how to get involved with both.
Pencil us in for June 13th – We’re looking forward to seeing you soon!
Warmly,
David Rubin, NYC/NJ – Area Chapter Director, NYCChapter@FSHDSociety.org