Parents’ Roundtable – FSHD science with Heloise

Mesa redonda de padres

8:00 p. m. ET | 7:00 p. m. CT | 6:00 p. m. MT | 5:00 p. m. PT

Heloise Hoffmann, now a student at Stanford University, explains the science of FSHD to your kids (and you) in easy-to-understand terms. She’ll answer your questions and discuss the new treatments that are being developed, including some exciting ideas she’s working on with a team of fellow students. If you haven’t met her before, she is simply awesome. We have followed Heloise’s journey since her diagnosis with FSHD at age 13. She is going to change the world!

Join us for our monthly Parents’ Roundtable on the 3rd Tuesday of each month, where parents meet to exchange ideas, offer support, and gain insight to keep our children with FSHD as healthy and mobile as possible, and to advocate for more research and clinical trials for children. We will have plenty of time for parents to exchange ideas and ask/answer questions from other parents.

Nos encantaría conocer tu opinión y contar con tu participación. Únete a nosotros y comparte tus ideas, preguntas, respuestas, consejos y trucos.

Una vez que se una al grupo enviando su confirmación de asistencia a una reunión, no será necesario que se registre para las reuniones mensuales. Recibirá automáticamente recordatorios mensuales e información sobre cómo conectarse por teléfono o Zoom. Puede cambiar su afiliación al grupo en cualquier momento enviándonos un correo electrónico a info@fshdsociety.org.

Ally Roets y Sam Ray
Parents’ Roundtable Directors

Más información sobre el Mesa redonda de padres