Mesa redonda de padres

Mesa redonda de padres

8:00 p. m. ET | 7:00 p. m. CT | 6:00 p. m. MT | 5:00 p. m. PT

Join us for the October Parents Roundtable with special guest Dr. Corrie Erasmus, a leading FSHD researcher from the Netherlands. Dr. Erasmus will present findings from her groundbreaking 5-year study on early onset FSHD, one of the most comprehensive studies of its kind. Her research offers valuable insights into the progression, challenges, and care needs of children and adolescents living with FSHD, and has the potential to shape future standards of care and clinical research.

Join us for our monthly Parents’ Roundtable on the 3rd Tuesday of each month, where parents meet to exchange ideas, offer support, and gain insight to keep our children with FSHD as healthy and mobile as possible, and to advocate for more research and clinical trials for children. We will have plenty of time for parents to exchange ideas and ask/answer questions from other parents.

Nos encantaría conocer tu opinión y contar con tu participación. Únete a nosotros y comparte tus ideas, preguntas, respuestas, consejos y trucos.

Una vez que se una al grupo enviando su confirmación de asistencia a una reunión, no será necesario que se registre para las reuniones mensuales. Recibirá automáticamente recordatorios mensuales e información sobre cómo conectarse por teléfono o Zoom. Puede cambiar su afiliación al grupo en cualquier momento enviándonos un correo electrónico a info@fshdsociety.org.

Ally Roets y Sam Ray
Parents’ Roundtable Directors

Learn more about the Parents’ Roundtable