Mesa redonda de padres

Mesa redonda de padres

8:00 p. m. ET | 7:00 p. m. CT | 6:00 p. m. MT | 5:00 p. m. PT

Join us for the next Parents Roundtable on August 19th, featuring Dr. Kathy Mathews, who will discuss genetic testing for children and how to talk with your child about an FSHD diagnosis. This important conversation will explore both the medical and emotional aspects of navigating FSHD within the family. All family members are welcome, as these topics can be challenging and are best faced together with support and guidance.

Join us for our monthly Parents’ Roundtable on the 3rd Tuesday of each month, where parents meet to exchange ideas, offer support, and gain insight to keep our children with FSHD as healthy and mobile as possible, and to advocate for more research and clinical trials for children. We will have plenty of time for parents to exchange ideas and ask/answer questions from other parents.

Nos encantaría conocer tu opinión y contar con tu participación. Únete a nosotros y comparte tus ideas, preguntas, respuestas, consejos y trucos.

Una vez que se una al grupo enviando su confirmación de asistencia a una reunión, no será necesario que se registre para las reuniones mensuales. Recibirá automáticamente recordatorios mensuales e información sobre cómo conectarse por teléfono o Zoom. Puede cambiar su afiliación al grupo en cualquier momento enviándonos un correo electrónico a info@fshdsociety.org.

Ally Roets y Sam Ray
Parents’ Roundtable Directors

Más información sobre el Mesa redonda de padres